ALS ResearchViral PhilanthropyJul 18, 2026, 4:31 AM· 5 min read

NFL Stars Revive the Ice Bucket Challenge, Sparking a New Wave of ALS Research Funding

Following former running back Chris Johnson's ALS diagnosis, athletes and fans have resurrected the viral 2014 campaign. The movement has already tripled donations to the ALS Association, funding the next generation of neurological research.

By Factlen Editorial Team

ALS Advocacy Organizations 40%The Sports Community 30%Neurological Researchers 30%
ALS Advocacy Organizations
Focused on capitalizing on the viral momentum to close the funding gap for clinical trials.
The Sports Community
Focused on honoring a respected peer and leveraging athletic platforms for social good.
Neurological Researchers
Focused on the tangible scientific breakthroughs funded by grassroots campaigns.

What's not represented

  • · Patients currently living with bulbar-onset ALS, whose disease progression is often faster than the limb-onset form.
  • · Researchers working on alternative neurodegenerative diseases who compete for the same pool of federal and philanthropic grant money.

Why this matters

The revival of this viral trend demonstrates how social media can still be harnessed for tangible medical progress. The funds raised are directly accelerating clinical trials for a disease that currently has no cure, potentially altering the timeline for breakthrough treatments.

Key points

  • Former NFL running back Chris Johnson's recent ALS diagnosis has sparked a widespread revival of the 2014 Ice Bucket Challenge.
  • The renewed campaign has already tripled charitable giving to the ALS Association, with many fans donating $28 to honor Johnson's jersey number.
  • The original 2014 movement raised over $115 million for the organization, directly funding the discovery of new genes and the first gene-targeted treatment.
  • Medical experts hope the 2026 influx of funds will help develop therapies for the 98 percent of ALS patients who cannot benefit from current targeted treatments.
3x
Increase in ALS Association giving
$28
Common donation honoring Johnson's jersey
25%
Increase in donations from men
$115M
Raised by the 2014 challenge for the ALS Association
85%
Proportion of ALS cases that are sporadic

In late June 2026, former NFL running back Chris Johnson, known affectionately to fans as "CJ2K," appeared on national television to share a devastating personal update: at age 39, he had been diagnosed with amyotrophic lateral sclerosis (ALS). The three-time Pro Bowl selection, who holds the NFL record for the most yards from scrimmage in a single season, used eye-tracking technology to communicate during the interview.[2][3]

The sports world's response was immediate, but it was a single fan who sparked a broader movement. Shortly after the broadcast, former Utah basketball player and content creator Hunter Mecum posted a video of himself dumping a large bowl of ice water over his head in Johnson's honor.[2][4]

Recognizing the potential to mobilize his massive fanbase, Johnson took to social media to issue a call to action. "Years ago, the ALS Ice Bucket Challenge united millions of people around the world around one cause and helped change the fight against this disease," Johnson wrote. "Today, I'm asking you to help me do it again."[1]

The revival of the 2014 viral sensation quickly gained traction among Johnson's peers. Former NFL stars Marshawn Lynch and LenDale White were among the first to accept the challenge, posting videos of themselves being doused in freezing water. The campaign even reached the NBA, with Johnson's young daughter publicly nominating LeBron James to participate.[2][4][6]

The ALS Association reported a massive spike in targeted giving within days of the campaign's revival.
The ALS Association reported a massive spike in targeted giving within days of the campaign's revival.

The financial impact of this renewed visibility has been staggering. According to the ALS Association, charitable giving tripled in the days following Johnson's announcement, signaling a massive influx of grassroots support.[6]

The demographics of the donor base have also shifted notably, with the organization reporting a 25 percent increase in contributions from men—a clear indicator that football fans are rallying behind one of their own. In a touching tribute to Johnson's legacy on the field, a significant portion of the incoming donations are for exactly $28, matching his iconic jersey number.[4][6]

To understand the stakes of this revival, medical experts point to the unprecedented success of the original Ice Bucket Challenge. Launched in 2014 by Anthony Senerchia, Pete Frates, and Pat Quinn—three young men living with ALS who have since passed away—the campaign became a defining moment in social media activism.[4][6]

That initial wave inspired more than 17 million participants and raised an estimated $115 million for the ALS Association alone, with global totals exceeding $220 million.[3][4]

The original 2014 campaign fundamentally altered the financial landscape of ALS research.
The original 2014 campaign fundamentally altered the financial landscape of ALS research.

Neurologists emphasize that the 2014 windfall fundamentally altered the trajectory of ALS research. "It brought extreme recognition to the disease," noted Dr. Eva Feldman, director of the Scott Pranger ALS Center at the University of Michigan. The influx of capital spawned a new generation of young investigators and funded the identification of over a dozen genes associated with the disease.[1]

Neurologists emphasize that the 2014 windfall fundamentally altered the trajectory of ALS research.

Thanks to that foundational research, the medical community recently saw the introduction of the first gene-targeted treatment for ALS, which can slow disease progression and, in some cases, restore lost function. The number of specialized ALS clinics nationwide has also more than doubled over the past decade.[4][6]

Despite these advancements, ALS remains a 100 percent fatal neurodegenerative condition with no known cure. The disease progressively destroys nerve cells in the brain and spinal cord, eventually robbing patients of their ability to walk, speak, swallow, and breathe.[2][3][5][6]

Johnson's specific diagnosis is sporadic ALS, which accounts for more than 85 percent of all cases. Unlike familial ALS, which is inherited, sporadic cases occur without a known family history. While the exact cause remains elusive, researchers believe a combination of genetic, environmental, and lifestyle factors are at play.[5]

Sporadic ALS, which occurs without a known family history, accounts for the vast majority of diagnoses.
Sporadic ALS, which occurs without a known family history, accounts for the vast majority of diagnoses.

The symptoms of ALS present differently in every patient. Approximately 80 percent of individuals, including Johnson, experience limb-onset ALS, where muscle weakness first appears in the arms and legs. Others experience bulbar-onset ALS, which initially affects the muscles used for swallowing and speaking and often progresses more rapidly.[5]

Currently, the breakthrough gene-targeted therapies developed from the 2014 funding only reach about 2 percent of people living with the disease. For the remaining 98 percent, treatments are largely focused on managing symptoms and improving quality of life.[4]

This stark reality is what makes the 2026 revival so critical. The ALS Association and independent researchers are hoping this new wave of funding will bridge that 98 percent gap, providing the capital needed to push experimental drugs through expensive clinical trials.[4]

Researchers hope the new wave of funding will accelerate clinical trials for dozens of potential treatments.
Researchers hope the new wave of funding will accelerate clinical trials for dozens of potential treatments.

"We can do so much more now than we could then," Dr. Feldman explained, noting that new funds will support larger-scale studies on risk factors and the development of dozens of potential treatments currently in the pipeline.[1][4]

While a single "silver bullet" cure may not be imminent, experts are increasingly optimistic about transforming ALS from a rapidly fatal diagnosis into a livable, manageable condition over the next decade.[1]

As the ice water continues to pour across social media feeds this summer, the campaign stands as a testament to the enduring power of viral goodwill. By picking up the torch lit a decade ago, Johnson and his supporters are ensuring that the fight against Lou Gehrig's disease remains in the public consciousness, one bucket at a time.[1][4]

How we got here

  1. Summer 2014

    The original Ice Bucket Challenge goes viral, raising over $220 million globally for ALS research.

  2. June 2026

    Former NFL running back Chris Johnson publicly reveals his diagnosis with sporadic ALS.

  3. Late June 2026

    Content creator Hunter Mecum posts a tribute video, prompting Johnson to call for a revival of the challenge.

  4. July 2026

    Donations to the ALS Association triple as NFL stars and fans flood social media with new challenge videos.

Viewpoints in depth

ALS Advocacy Organizations

Focused on capitalizing on the viral momentum to close the funding gap for clinical trials.

Advocacy groups emphasize that while the 2014 challenge was revolutionary, the resulting treatments currently only reach about 2 percent of patients. They view this 2026 revival not just as a nostalgic trend, but as an urgent financial lifeline needed to fund the dozens of therapies currently in the pipeline and extend care to the remaining 98 percent of those diagnosed.

The Sports Community

Focused on honoring a respected peer and leveraging athletic platforms for social good.

For former and current athletes, participating in the challenge is a show of solidarity with Chris Johnson. The sports world views the movement as a testament to the brotherhood of the NFL, using their massive social media followings to turn a personal tragedy into a highly visible, actionable cause that engages fans directly.

Neurological Researchers

Focused on the tangible scientific breakthroughs funded by grassroots campaigns.

Medical professionals highlight the direct correlation between viral fundraising and laboratory success. They point out that the 2014 windfall directly funded the discovery of over a dozen ALS-associated genes. Researchers are optimistic that this new influx of capital will allow them to scale up studies on environmental risk factors and accelerate the timeline for making ALS a manageable, livable condition.

What we don't know

  • Whether the 2026 revival will match or exceed the $220 million global total raised by the original 2014 campaign.
  • The exact environmental and lifestyle factors that trigger sporadic ALS in patients without a family history of the disease.
  • When the dozens of potential treatments currently in the clinical pipeline might receive FDA approval for widespread use.

Key terms

Amyotrophic Lateral Sclerosis (ALS)
A progressive neurodegenerative disease that affects nerve cells in the brain and spinal cord, leading to loss of muscle control.
Sporadic ALS
The most common form of the disease, occurring in individuals without a known family history of ALS.
Limb-onset ALS
A presentation of the disease where symptoms, such as muscle weakness, first appear in the arms or legs.
Gene-targeted treatment
Medical therapies designed to interact with specific genetic mutations that cause or contribute to a disease.

Frequently asked

Why are people donating exactly $28?

Many fans are donating $28 as a tribute to Chris Johnson's jersey number during his record-setting NFL career.

Who started the original Ice Bucket Challenge?

The 2014 campaign was launched by Anthony Senerchia, Pete Frates, and Pat Quinn, three young men living with ALS who have since passed away.

Did the 2014 challenge actually help?

Yes. The funds raised in 2014 led to the discovery of new ALS-linked genes, doubled the number of specialized clinics, and helped develop the first gene-targeted treatment for the disease.

Is there a cure for ALS?

There is currently no cure for ALS, and the disease remains 100 percent fatal, though new treatments are helping to slow its progression in some patients.

Sources

Source coverage

7 outlets

3 viewpoints surfaced

ALS Advocacy Organizations 40%The Sports Community 30%Neurological Researchers 30%
  1. [1]The Washington PostNeurological Researchers

    Ice Bucket Challenge revived by NFL stars after Chris Johnson's ALS diagnosis

    Read on The Washington Post
  2. [2]Los Angeles TimesThe Sports Community

    Days after revealing his ALS diagnosis, former NFL star Chris Johnson is calling on fans to revive the Ice Bucket Challenge

    Read on Los Angeles Times
  3. [3]WGRZThe Sports Community

    Former NFL star Chris Johnson revives Ice Bucket Challenge after ALS diagnosis

    Read on WGRZ
  4. [4]ALS AssociationALS Advocacy Organizations

    NFL Fans Rally Behind Chris Johnson's ALS Fight

    Read on ALS Association
  5. [5]Atrium HealthNeurological Researchers

    The Ice Bucket Challenge is Making a Return

    Read on Atrium Health
  6. [6]PR NewswireALS Advocacy Organizations

    The Ice Bucket Challenge Is Back: ALS Association Giving Triples Following Chris Johnson's Diagnosis Announcement

    Read on PR Newswire
  7. [7]WikipediaNeurological Researchers

    Ice Bucket Challenge

    Read on Wikipedia
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